After three long months of unanswered voicemails, i got a call from my genetic/fertility counselor last week. I was hoping for an update of any sort, really, but was surprised with news.
Really great news.
Some rule or guideline has changed, making the genetic testing I need in order to move forward with getting pregnant a whole lot more affordable.
Bloodwork that previously would have cost us thousands of dollars is now no out-of-pocket cost for the patient. 100% covered.
I had the blood drawn the very next day.
In a matter of two days, my entire demeanor changed . . . but I didn’t really realize it until this morning, when I noticed a Facebook status update of a high school friend, announcing that she and her hubby were expecting twins, her 4th and 5th children.
My response is different. Two weeks ago, I would have cried, overwhelmed by my own bitterness and anger that after three years, I wasn’t any closer to being a mom. Instead, I smiled and clicked through the ultrasound photos they had posted.
I was happy again. For them, and it was genuine. No fake smiles or forced congratulations.
It will take 6-8 weeks to get the test results. At that point, we’ll know if the lab was able to locate the mutation in my DNA, which is how we’ll learn if future embryos have the disease or not. If they aren’t able to locate the affected genes at all, we’ll start working toward adoption.
In the next two months, I’ve got a lot to do, especially when it comes to maintaining healthy blood sugar numbers. That, in itself, has been so much easier this week, now knowing the end goal is possible. It’s a much needed spark of motivation.
I’ve still got a long way to go from here. There’s no quick fix to trying to have a child that doesn’t inherit Muscular Dystrophy.
But we’re getting there.




YAY! I’m so happy for you!! You guys are going to be the greatest parents EVER!
And soooo glad that tests are 100% covered…
I too use to read statuses, see pictures and be upset that after 7 years of being married, I don’t have my own baby (ies) but I’m now happy for people who find out, expecting and just give birth…I may never have a child of my own and I now and fully OK with that…
Dear, I am so happy for you. I know you have been working towards this goal for a very long time now. Just keep your head up and know that your time IS coming.
Love ya chicky.
That is awesome!!
hooray!! so glad things are moving forward!!
That is awesome news! The wait would kill me, but at least you know there is a light at the end of that tunnel.
Congratulations, Jenn, that’s great news! My fingers are crossed for ya!
YAYYY!!!!!! That is excellent news! So happy for you!!!!!! <3
I am so, so happy for you!
So happy for you!!!!
That is so awesome! Just when you think you can’t hate insurance companies any more, they do something nice.
Knowing it will save them money in the long run.
I’m so happy for you!
This was such a real post. An honest open and really hopefull post. Love it.
(Following from PYHO)
I can’t wait to check out more of your blog!
oh wow! I don’t know your history but I am still so happy for you! My fingers are crossed for positive results and that you will be able to have a healthy baby someday.
The fact that you are able to be happy for others is a HUGE step. I know so many people that struggle with this same thing.
Great news girl!! I hope this works out for you guys
Keep us psoted!
So happy to hear the good news
Thanks for the comment today…I really hope you can get the ball rolling. I know that fertility can be so difficult, but it is nice when you can start feeling somewhat happy over those pregnancy announcement rather than curling up in a ball.
where are the tissues? i am SOOO happy for you! you will make an awsome mom…. look forward to some more “happy” news!
*hugs,
shelley
Congratulations on being able to move forward with such a big step! I hope you have some even more amazing news in the very near future.
This is awesome! I know I don’t ‘know’ you very well- but I am so excited for you. I know how crappy it can be to watch everyone else around you get preggars and have kids. I just assume that when I’m ready (ie: done with grad school) I’ll be able to have them, but I’m afraid I’ll have issues and then I’ll be so bitter.
So happy for you!
We had to fight infertility around 3 years. Then once I quit worrying about it we got our baby. I recall when others got pregnant how upsetting it was.
We also had two other couples that were in the same boat. We got ours natural, one adopted and the third adopted through foster care all around the same time our blessings were received.
YAY! I am so happy that you’re moving forward, and can’t wait to read all about your journey to parenthood!
So glad to hear the good news. Amazing how that can change our perspective!
I wish you luck in your journey! Happy SITS Day too!
What wonderful news….Insurance can be such a nightmare. I have Myasthenia Gravis (another nuero muscular disease) and also carry the gene for Tay Sachs. So we had my hubby tested to make sure HE didn’t carry the gene, or we would have adopted. I hope and pray you get the answers you want!!
I truly believe in being happy for others when they announce their good news, it makes life so much less stressful than petty jealousy (easier said than done, I know!) Last October I was at the hospital visiting someone I grew up with who is two years younger than me and had given birth to her second baby. In my mind I thought how beautiful her son was, genuinely felt happy for her, and I wondered when it would be time for us to be parents. Less than 10 months later we welcomed our own little baby boy. I wish you the best of luck!
I’m just reading this post now. Awesome news! Have you gotten any more info? I hope it’s all good news from here on out for you!
We still have 3 weeks before we get our results back from the testing. I’ll be updating as soon as I know!
Can’t wait to hear! Fingers crossed for you!